Day 170 – 19th June

Hospital again today for my infusion… There is still no news about the funding appeal for the new med unfortunately, and my current regime is working less and less 😣. It’s very frustrating! Especially with all the side-effects from having to increase my steroids 👎

But I’m grateful for the great team at the hospital for fighting my corner. Everything crossed that I get some good news ASAP…

Until then, I’ll continue to enjoy my good moments and rest-up for the weekends, so I can enjoy some fun with the boys 😉. It does mean that I can do very little in the week, or I feel far too unwell, but my weekends are far more important! Lets hope I can continue enjoying some weekend fun until the new med…

Day 169 – 18th June

The local cafe is holding a bag sale in aid of my non-profit today! How very lovely of them 😄. I’m so touched and delighted that they’ve thought of us, and they’ve organised it all themselves!

I’m desperately hoping that I have enough energy after dog training this morning to call in and have a coffee there and show my support 👍. I’ll do everything I can to make it, even if it’s only for a very short visit 😉

I’m so thankful that my local community cafe is supporting us in this way! It’s just so so lovely!

My son’s high school is also planning to fundraiser for us too 👍👍👍. Fantastic!

We’ll be able to think of even more ways to raise awareness and also organise a get-together with other Still’s Disease fighters later in the year 😄!

So many people are so very lovely 😉

Day 168 – 17th June

Half way through of my year of Being Chronically Thankful!!! The time has flown!!!

I hope you’ve enjoyed reading the posts as much as I’ve enjoyed writing them 😉

I’m really thankful for the opportunity to look at my life from a different perspective. Being Chronically Thankful is definitely making me look at things from a more positive light. Even on the worst of days, there really is always something to be grateful for 👍

Today is a good example. I’m feeling achey breaky and fluey 😔, not fun! But I’m enjoying watching the hens whilst snuggling up with Rolo Super Spaniel. I can’t concentrate on reading the newspaper yet today, so a fun DVD, something I’ve watched before so I don’t have to stretch my spoonless brain, to keep me occupied too is the plan 😄

I’m grateful I have these things to keep me smiling on the bad days 😎

Day 167 – 16th June

Clipped wings! I did it, with the help if my eldest 😄

After a quick chat with the vet and watching a couple of videos on the Internet I gave it a whirl, and it was very very easy 👍. So now the chickens are wandering freely in a section if the garden 😉. They’re loving it! And the boys are thoroughly enjoying stroking and hand feeding them too.

A day in the garden and doing a few odd jobs today, weather permitting…

I’m very grateful that so far, everything is going smoothly with our little group and they’re settling we’ll. It’s lovely to see my boys having such a great time with them 😄. And I’m loving it 💞!!

Day 166 – 15th June

A Young Carers party for the boys today 👍. I’m really thankful they can have some fun with Barnados, they deserve it after all the help they give me 😄

My eldest returned with a cupcake he’d decorated for me – a chick of course!

I hope there are some more fun activities they can go along too with the charity during the summer too. And it’s good to know they have someone to turn too if they’re feeling worried or anything at all is bothering them, or just for a friendly ear.

Day 165 – 14th June

Tummy bug all round today 😣, so both boys had the day off school. A muzzy headache, sickness and dizziness for the three of us for the morning, but after resting and taking painkillers we all felt much happier in the afternoon 👍

So fun in the garden with my eldest’s new tent!

They had a blast!

I’m really thankful we didn’t end up laid-up sick for long 😉. We really were very lucky that it passed so quickly and the boys could have a really fun afternoon, and sleep out through the night too 👍

Day 164 – 13th June

A little jaunt out today to buy a few things I need and to take some technology in for repair…

It feels good to get out, at least once a week if possible 😉. The satisfaction of achieving a few jobs and a change of scenery helps very much when a chronic illness forces you to be resting at home for a large portion of the time.

Unfortunately it does mean I’ll be exhausted, in more pain and feeling poorly later and will need a good rest tomorrow 😔. But that won’t stop me! I’d go insane if I didn’t live and have fun 😄

Thank goodness for good friends to help me shop and my fab boys to help me to recover 😉

Day 163 – 12th June

It is one whole year since we became a single-parent group!! Time flies! ⌚

We decided to celebrate by having a ‘Family Day’, creating some mementoes and enjoying a party dinner 😄. But my eldest came home totally exhausted from his school trip, so we’ve opted for plan B – celebrating at the weekend 😉

So a peaceful day and evening instead…

I’m looking forward to a lovely weekend now, which is fab! I always like to try to make the weekends special, so it’s all turned out better than planned 👍

We had 3 eggs today!! Unfortunately 2 of them were broken 😔. They’re clearly more run down than they look, poor girls. But with some tender care they’ll be strong and plump girls in no time! Lots of oyster shell and a mineral tonic added to their food too will soon have the eggs stronger 😉. And with the lovely fresh veg and corn they’re getting every afternoon, they’ll be rocking!

Day 162 – 11th June

Our first egg!!

My boys were delighted to find this when they came home yesterday 😄. We’ll enjoy our first egg meal once we have three 😉 – one each!

Today was going to be dog training, but rain held off play… ☔ So instead I’m resting up, which to be honest is far more needed after our busy weekend 😴. I’ll be much more tuned-in to training when I feel a little better 😉

The rain, although not enjoyed, is very much needed! The garden will be a much more succulent place 👍. My veg seeds, potato’s, fruit bushes and herbs are coming along nicely now 😄. It’ll be brilliant when it’s time to harvest our first crops – we bought some fast growing varieties, so we should have some lovely veg in just a couple more months!

I’m so thankful for our small, but perfectly formed garden 😎. Having the space and a little energy for our food and hens, plus a relaxing area to rest too and enjoy the odd BBQ and fire-pit is so wonderful!

Day 161 – 10th June

I thought that yesterday topped the thankful scales, but today so far has been AMAZING!!!

Why???

I managed to win the bids on a used bath lift seat 👍, which a friend collected for me last night. After charging over-night I’ve been able to enjoy a most wonderful soak in the bath for the first time in a long time!!!

It was HEAVEN! 😎 I love, love, love it! 😍

Although having to sit upright feels a little strange, the relief from soaking in warm water was BLISS!!! My knees and ankles have been driving me crazy! So to get some relief is fantastic! Plus, the effects lasted for about an hour afterwards too 😉

My new morning routine is sorted! Once the boys have left for school, I’ll be in the tub reading my morning newspaper 👍

I’m so very, very grateful 😄. A great start to a lovely sunny day 😉

I’m out for lunch in the village with a friend today too, and then I aim to enjoy sitting in my reclining chair in the garden, watching the hens 👍. The sound of them gently cooing drifting into the house from the open back door is so soothing! Better than any relaxation track!

A fantastic start to what will hopefully be a lovely week 😄

Until tomorrow…